Transcultural adaptation and validation of the generic instrument of measurement of Health Related Quality of Life, DISABKIDS 37, for Mexican children and adolescent with chronic diseases and their parents or caregivers: preliminary results / Adaptação transcultural e validação do instrumento genérico de mensuração de qualidade de vida relacionada à saúde, DISABKIDS 37, para crianças e adolescentes mexicanos com doenças crônicas e seus pais ou cuidadores: fase I

AUTOR(ES)
DATA DE PUBLICAÇÃO

2007

RESUMO

Generally, we find as the main focus in the conceptual models about Quality of Life (QoL), the individual perceptions on one?s experiences and satisfaction regarding different areas of life. QoL is assumed as a subjective concept. Instruments for its measurement have been developed and its transcultural validations are important processes, related to the validity and reliability of the adapted versions, which allow the results to be comparable between different cultures. This methodological study aimed to analyze the content of the questionnaire DISABKIDS 37 from the perspective of the respondents and describe its Mexican translation, cultural adaptation and validation of a pilot study as a first psychometric analysis for the simulation of the field test. The method used was the cross-sectional carried out in pediatric hospitals in Mexico in an accidental sample of 47 children/adolescents with asthma or epilepsy, age between 8 and 18 years old and their parents or caregivers. The semantic validation was observed through the understanding of children regarding the items of the DISABKIDS 37 questionnaire, the internal consistency showed adequate results for the total (0.93/0.95 children/caregivers) and the instruments dimensions. Intercorrelation between the sub-scales indicated significant correlations with one another. The DISABKIDS 37 discriminated between conditions and severity. Moderated correlations were found between versions children and parents for all the dimensions of the scale. The dimension Treatment was an exception, with weak concordance. Regarding the general score, the concordance was strong. Concluding, the final versions of the DISABKIDS 37 for Mexico were easy to understand and can be used as useful instruments for the Health Related Quality of Life (HRQL) analysis in children and adolescents with chronic conditions.

ASSUNTO(S)

qualidade de vida condições crônicas chronic conditions quality of life estudos de validação crianças validation studies children

ACESSO AO ARTIGO

Documentos Relacionados