Estudo epidemiológico dos defeitos congênitos registrados no campo 34 da declaração de nascido vivo no município de São Paulo e o estabelecimento de um sistema informatizado de referência e contra-referência. / Epidemiologic study of birth defects registered in field 34 of newborn reports from the municipality of sao paulo and the establishment of a computerized referral and counter-referral system

AUTOR(ES)
FONTE

IBICT - Instituto Brasileiro de Informação em Ciência e Tecnologia

DATA DE PUBLICAÇÃO

26/08/2009

RESUMO

Purpose: The aim of this work was to improve registration of field 34 in born-alive reports of four maternity hospitals in the municipality of São Paulo throughout the year of 2008. Methods: The Born-Alive Information System database of the Municipal Health Secretariat of São Paulo was used in order to accompany the evolution of birth defect registrations. An electronic web-based medical record was used to send dubious cases to a well-established medical genetics center. The electronic medical record contained anamnesis, physical exam, and photos of the newborn. Four maternity hospitals were assessed, with a total sample of 10 000 births in the year; and these hospitals did not have a geneticist amongst the staff. Results: The records of birth defects in São Paulo were: 0.42% in 2001, 0.50% in 2002, 0.53% in 2003, 0.63% in 2004, 0.69% in 2005, 0.73% in 2006, 0.85% in 2007, and 0.91% in 2008. The records of birth defects in the four maternities were: 0.22% in 2001, 0.76% in 2002, 0.92% in 2003, 0.92% in 2004, 1.12% in 2005, 1.27% in 2006, 1.34% in 2007, and 2.02% in 2008. São Paulo registered 0.07 Down syndrome cases per 1000 births in 2008, while the four maternity hospitals registered 0.08 Down syndrome cases per 1000 births in the same year. Conclusions: According to the Born-Alive Information System database, there was a raise in the number of notifications regarding birth defects in the four maternity hospitals when compared to previous years and to the records of São Paulo as a whole. The web-based referral and counter-referral method was efficient. The improvement in quantity as well as in quality of field 34 demonstrates the important presence of a geneticist doctor, even if only through long-distance aid to the pediatrician in the maternity hospital. The referral and counter-referral system promotes agility, providing a better service for patients and their family members at the Public Health System.

ASSUNTO(S)

genética médica defeitos congênitos declaração de nascido vivo sinasc internet são paulo morfologia

ACESSO AO ARTIGO

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