Tipos de apoyo a las familias con hijos con discapacidad y su influencia en la calidad de vida familiar

AUTOR(ES)

Araújo, Clarissa Altina Cunha de, Paz-Lourido, Berta, Gelabert, Sebastià Verger

FONTE

Ciênc. saúde coletiva

DATA DE PUBLICAÇÃO

2016-10

RESUMO

Abstract Different types of supports to families are among the aspects that contribute to family quality of life. This study aims to identify the types of supports that families of children with disabilities, users of early intervention services, consider relevant and how public administration influences the quality of this support. This is a qualitative study based on a critical social paradigm. Sixteen mothers and four fathers were interviewed and their contributions were analyzed using discourse analysis. The importance of family support and networks of parents of children with disabilities were highlighted. The role of the supports by health professionals is also crucial and, therefore, cuts in public health and social services have exacerbated the inequity in health. In practice this is highlighted in relation to those who can and the ones who cannot afford additional services. Other approaches in the support to families are suggested.

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