Repercussions on the routine of families with children exposed to HIV at birth / RepercussÃes do cotidiano de famÃlias com crianÃas nascidas expostas ao HIV

AUTOR(ES)
FONTE

IBICT - Instituto Brasileiro de Informação em Ciência e Tecnologia

DATA DE PUBLICAÇÃO

29/08/2009

RESUMO

The experience with people carrying the Human Immunodeficiency Virus (HIV) permitted to know more closely the anguish that families of HIV patients have to cope with because the society does not easily accept living with contaminated people and displays prejudice and discrimination. Consequently, the family emerges as the unit of care and as an important source of support for individuals infected with HIV, contributing to the patientsâ good physical and mental performance and redistributing their tasks and roles with a view to improve their quality of life. In case in which children are exposed to the HIV, the family should focus on educational actions supported by healthcare professionals, seeking to construct solid ties between family â health service â nurse. In this perspective, this studyâs objectives were based on the following thesis: families of children who were exposed to HIV at birth suffer repercussions that alter their routine. Thus, the general objective was to identify the repercussions of the HIV/AIDS infection on the daily lives of families with infected children. It is a qualitative study carried out in the households of families with children vertically exposed to HIV. Data were collected through a questionnaire applied to 21 mothers between July and December 2008. Collected data originated the following categories: 1. Discovery of the maternal HIV diagnosis; 2. Discovery of the vertical transmission risk; 3. Living in the same house with other family members, in the community and school after the childâs diagnosis; 4. Difficulties mothers face in the childâs care; 5. Discrimination experienced by the family; 6. Feelings after the interview. Genograms and ecomaps were developed for those families considered severely dysfunctional according to the family APGAR. In addition to the identification of the context in which families affected by HIV live, this study permitted a real approximation of their routine. Based on the acknowledgment of the vulnerability of families with one or more members infected by the HIV, nursing interventions can be planned to help them to cope with the disease and prejudice. Hence, essential changes focused on familiesâ strengthening can be promoted and guide them to a new path to cope with the vulnerability they experience.

ASSUNTO(S)

enfermagem sÃndrome de imunodeficiÃncia adquirida famÃlia

ACESSO AO ARTIGO

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