Indivíduos com síndrome de Down: análise das principais repercussões sobre a saúde e a família

AUTOR(ES)

Bianca dos Santos Alves

DATA DE PUBLICAÇÃO

2009

RESUMO

The Down Syndrome (DS) is the most frequent genetic cause of mental disability and has been hundreds of studies around the world focusing on clinical, epidemiological, cytogenetic and more recently genomics. This study had as main objective to describe the main sociodemographic characteristics of families of individuals with DS, affecting the health and investigation of possible changes in routine maintenance of family and marriage. 100 families participated in this research not selected, persons with DS at different ages, independent of sex and commitment. Data were collected through semi-structured questionnaire specially developed for the researcher, applied to the main caregivers, traditional institution in the city of São Paulo. The main results were: high age of the mothers and fathers at birth of individuals with DS and low maternal education. The health problems were recorded at high frequency. The frequency of separation of parents (10%) was lower than expected for the general population (18%), but 50% of mothers reported that the reason for the separation was due to the birth of the child with DS. The general adaptation of families with disabled children was appropriate.

ASSUNTO(S)

psicologia deficiência down syndrome disability família families síndrome de down

Documentos Relacionados

• Independência da criança com síndrome de Down: a experiência da família
• Estigma, cuidador e criança com síndrome de Down: análise bioética
• A família no contexto da Síndrome de Down: revisando a literatura
• Controle postural em indivíduos portadores da síndrome de Down: revisão de literatura
• A produção escrita de alunos com e sem síndrome de Down: uma análise da coerência textual