Apoio social e rede social às famílias de crianças com câncer / Social support and social network for families of children with cancer

AUTOR(ES)

Iara Cristina da Silva Pedro

DATA DE PUBLICAÇÃO

2008

RESUMO

This research aimed to identify, from the perspective of family member of children with cancer, these clientssocial network and social support types, according to the experiences related to the disease phase they were going through: crisis, chronic and terminal phase. A descriptive study with a qualitative approach was carried out, based on the theoretical framework of family nursing in health promotion. Research participants included all members of three families that had a child with cancer, who was under follow-up at a teaching hospital in the interior of São Paulo State, totaling 15 participants. For data collection, in-depth interviews were used, as well as a field diary and patient file reading, besides the genogram and the ecomap. Data were analyzed through content analysis. For each family under study, the results were grouped into emotional, instrumental, informational, appraisal and spiritual/religious support, ranging in intensity according to the disease phase. In the crisis phase, the main supports were instrumental and emotional; emotional in the chronic phase; in the terminal phase: instrumental support in the pre-terminal period, and spiritual and appraisal support in the period of solving the loss. The most significant social network was constituted by the closest relatives, but other components also contributed to the formation of the network of relationships that made up this network, such as the extended family, the community and the hospital. By identifying these clientsnetwork and social support, the researcher supported to systemization of scientific knowledge, favoring family nursing practice and research. It is expected that this study will contribute to a broader assessment of social support needs of children with cancer and their relatives, particularly in their adjustments to the disease course, emphasizing health promotion.

ASSUNTO(S)

câncer enfermagem familiar social support cancer child apoio social família family criança family nursing

Documentos Relacionados

• Rede e apoio social às famílias de crianças com paralisia cerebral
• Apoio social e famílias de crianças com câncer: revisão integrativa
• Suporte social e qualidade de vida em famílias de crianças de espectro autístico
• Rede social e vínculos apoiadores das famílias de crianças com câncer
• Adolescence and motherhood: understanding the social network and social support